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Author Topic: NHMRC Guidelines  (Read 7193 times)
Posts: 21

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« on: August 28, 2015, 07:10:17 AM »

The National Health & Medical Research Council are reviewing the Ethical Guidelines on Assisted Reproductive Technology ( go to the bottom of this page and click on public consultations. For those who are not familiar with these guidelines they are what all Australian clinics are supposed to follow and they also cover access to information by donor conceived people. Submissions must be made by 17th September 2015 they can be by email or by using the online form. Comment on as much or as little as you want.
There is huge scope for comment as they are claiming to be serious about the welfare of people conceived by donated gametes but virtually nothing has changed in the guidelines for years. One line that particularly angers me (there are a number)is in section 5.9.1 which states:
If the consent form does not include permission for release of identifying information
(because the donation was made before the introduction of the 2004 edition of these
Ethical Guidelines and the gamete donor has not come forward in response to the public
information campaign, see paragraph 5.13), the clinic should make an appropriate effort,
consistent with the original consent document and the privacy rights of the donor, to
contact the gamete donor and obtain his or her consent to the release of information.

Paragraph 5.13 states:
Working in collaboration with relevant professional organisations, clinics should use forums for
public information to encourage people who were gamete donors before the introduction of
the 2004 edition of these Ethical Guidelines, and those born from these donated gametes, to
consider contacting the clinic and registering their consent for the release of information about
themselves (as outlined in paragraphs 4.2.3 and 5.Cool to persons born from the donated
gametes or genetic siblings and half-siblings, respectively.

There has never been such a campaign and virtually the same statement has been written in the guidelines since 2007!!

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