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There is huge scope for comment as they are claiming to be serious about the welfare of people conceived by donated gametes but virtually nothing has changed in the guidelines for years. One line that particularly angers me (there are a number)is in section 5.9.1 which states:
If the consent form does not include permission for release of identifying information
(because the donation was made before the introduction of the 2004 edition of these
Ethical Guidelines and the gamete donor has not come forward in response to the public
information campaign, see paragraph 5.13), the clinic should make an appropriate effort,
consistent with the original consent document and the privacy rights of the donor, to
contact the gamete donor and obtain his or her consent to the release of information.
Paragraph 5.13 states:
Working in collaboration with relevant professional organisations, clinics should use forums for
public information to encourage people who were gamete donors before the introduction of
the 2004 edition of these Ethical Guidelines, and those born from these donated gametes, to
consider contacting the clinic and registering their consent for the release of information about
themselves (as outlined in paragraphs 4.2.3 and 5.
to persons born from the donatedgametes or genetic siblings and half-siblings, respectively.
There has never been such a campaign and virtually the same statement has been written in the guidelines since 2007!!
