Australian Donor Conception Forum

General Category => Legislation => Topic started by: Caroline on June 14, 2010, 02:57:01 AM



Title: Federal Inquiry
Post by: Caroline on June 14, 2010, 02:57:01 AM
Keep a look out on the federal parliament website (www.aph.gov.au) for an announcement about the Federal Inquiry into Donor Conception Practices. It could be as early as tomorrow (15th June 2010). If it goes through tomorrow there will be a press release from Senator Trish Crossin & then the committee that is holding the inquiry will be immediately open for submissions. I will post more info as I received it.


Title: Re: Federal Inquiry
Post by: dadams on June 23, 2010, 10:18:11 AM
We finally have our inquiry. It was announced today. ;D
This is a momentous occasion.
The terms of reference are as follows:
The past and present practices of donor conception in Australia, with particular
reference to:
(a) donor conception regulation and legislation across federal and state
jurisdictions;
(b) the conduct of clinics and medical services, including:
(i) payments for donors,
(ii) management of data relating to donor conception, and
(iii) provision of appropriate counselling and support services;
(c) the number of offspring born from each donor with reference to the risk of
consanguine relationships; and
(d) the rights of donor conceived individuals.


Title: Re: Federal Inquiry
Post by: Quinny on June 24, 2010, 01:14:10 AM
Excellent news! Is anything required of us? How does this inquiry proceed now?


Title: Re: Federal Inquiry
Post by: dadams on June 24, 2010, 01:32:36 AM
We have to make submissions.
Submissions can be made by anyone who has an interest in the matter.
Basically a submission can contain anything you want that you feel is important to the subject.
Details about how to make a submission will come out shortly.
Then apparently if they get enough submissions from a city then a committee will be sent to that city for public meetings (or something along those lines).


Title: Re: Federal Inquiry
Post by: Caroline on July 14, 2010, 06:18:40 AM
The submissions have started to roll into the Federal Donor Conception Inquiry if you go to http://www.aph.gov.au/Senate/committee/legcon_ctte/donor_conception/index.htm and click on submissions received you can then read the submissions that people have chosen to be made public.
If you haven't already put in your submission you need to do it by 30th July
Remember submissions can be made either fully open (with name included) or open but with no name or fully confidential (this means only the committee will read it - it will not be available on the website.


Title: Re: Federal Inquiry
Post by: Quinny on July 19, 2010, 05:52:12 AM
My submission is on the website now.

Now that I have re-read it, it is very short.


Title: Re: Federal Inquiry
Post by: dadams on July 19, 2010, 06:11:40 AM
Hi Adam
it was a great submission.
Sometimes articles/submissions etc that are too long cause the reader to lose the message, so I would worry about that.
Short, sharp and shiny and to the point.
I'm still working on mine.
Cheers
Damian


Title: Re: Federal Inquiry
Post by: Quinny on July 20, 2010, 01:45:46 AM
Thanks Damian.

I'm glad you think it's great! I can't wait to read yours. I assume you'll make it public. :)

I've been enjoying reading everyones submissions. It's great to see so many different points of view.


Title: Re: Federal Inquiry
Post by: dadams on July 22, 2010, 01:15:12 AM
Up to 17 submssions so far. I think that there might be a flood of them coming in next week. I know several that are still in the works.


Title: Re: Federal Inquiry
Post by: Quinny on July 22, 2010, 01:46:29 AM
Well 17 published on the website, there could be more private ones.

I hope there are a lot more submissions next week.


Title: Re: Federal Inquiry
Post by: Daven on July 22, 2010, 03:05:33 AM
I know a fair few people planning on finishing this weekend.


Title: Re: Federal Inquiry
Post by: dadams on July 27, 2010, 04:00:57 AM
another 14 have gone on today.


Title: Re: Federal Inquiry
Post by: dadams on July 29, 2010, 05:14:04 AM
update:
it is up to 51 submissions now


Title: Re: Federal Inquiry
Post by: Quinny on July 29, 2010, 02:09:40 PM
I liked your submission Damian! It was very well written and with great content.

I found it interesting to see the contrasting points of view of the ACT fertility clinic and Repromed.


Title: Re: Federal Inquiry
Post by: dadams on July 29, 2010, 10:27:11 PM
Thanks Adam, I was able to use parts of a paper I am writing on the subject so I had much of that info at hand.
re Canberra - they just want the status quo and you can see quite clearly that they are currently happy with their bottom line ($$$) and don't want any of that to change. I am appalled that our lives have been boiled down to $200.
Repromed on the other hand I think can see that there will be changes so are doing their best to put forward measures they think are easy for them or sound good to others but are trying to minimise it. You can see this by the fact that they put no detail in the components about the rights of offspring and just gloss over this part. Their comment on making extraordinary attempts to locate past donors does not match with their current and past attitudes and efforts. My experienes along with others of Repromed make me sceptical of this suggestion and that perhaps they are just paying lip service.
I must admit I almost kind of expected all of the clinics to tow the same line so it is interesting to see some discrepency.
It is taking quite some reading to get through it all.


Title: Re: Federal Inquiry
Post by: bev on August 02, 2010, 02:21:36 AM
My submission is up - number 72

There are so many astounding stories on there, so many that have made me cry. I just hope that this is something that FINALLY gets the message through to politicians that rights of the donor-conceived are sadly lacking and need fixing

Bev



Title: Re: Federal Inquiry
Post by: dadams on February 10, 2011, 03:23:40 AM
the report was tabled today
it is available on line through the same link


Title: Re: Federal Inquiry
Post by: Daven on February 10, 2011, 03:44:02 AM
.


Title: Re: Federal Inquiry
Post by: Quinny on February 10, 2011, 03:59:28 PM
I like the recommendations. I am quite surprised by it actually.

I especially like recommendations 3, 12 and 13. I am really REALLY surprised by recommendation 17!


Title: Re: Federal Inquiry
Post by: dadams on February 14, 2011, 09:22:36 PM
A lot of those were the ones I was pushing for so nice to see them get up.
There should hopefully be a lot of good come out of this and it is a landmark event in DC in the world.
However, I think for some of us that were pushing for more (and backed up with good ethical and legal arguments, as well as what appeared to be majority support in the public submissions) that there is a bit of a let down that it wasn't better.
So to be honest I am a bit deflated (although not surprised).


Title: Re: Federal Inquiry
Post by: Quinny on February 15, 2011, 12:24:00 AM
What did you miss out on?

I thought it would be more aligned with clinics so it's good to see that it isn't.


Title: Re: Federal Inquiry
Post by: dadams on February 15, 2011, 09:46:55 PM
By reading the submissions there was a majority support for retrospective access to identifying info. Even Monash IVF put in their support for it which was a major shock. The precedence for it lies in adoption (even though not universal) and in other areas. Many people don't realise that privacy never has and never will be absolute in Australia, it is regularly overturned in the courts particularly when the welfare of the child is taken into account.
By now having one rule for one group and one for the others the governemnt is then open to discrimination proceedings based on age.
The ban for payments is complexing because they are still allowing "re-imbursements". Lets just call a spade a spade. It is a financial transaction, money changes hands. It is like drawing a distinction between a tax and a levy (which is based on legal semantics) but for the average Joe it is still money leaving their pockets. With some clinics saying that they pay around $100 it is easy to for a bloke to rack up a few thou. If that is not inducement to donate and belittle the altruistic factor I don't know what is.
There is also no clause for getting updated medical histories periodically. While obtaining it would be problematic at least an attempt should be made.
On the whole though it is very positive and very child centric. It just falls over at the last hurdle for me, and from the above the desires of adults involved in the past are still allowed to hold sway.
It is a bit like saying that they can't do anything about the past and will only look at the future.
I am sure there are many on here that will probably disagree with me but that is my 2 cents.


Title: Re: Federal Inquiry
Post by: Quinny on February 16, 2011, 12:53:09 AM
In regards to the retrospective part I hadn't considered that as I assume there is no info about my donor in any records. I know that is not the case for everybody and if I knew that a clinic had that info I would be doing everything to get it.

I think that if they get the DNA register set up that is about as good as I can hope for.

I also was confused about the payments, not sure why they allowed that either.


Title: Re: Federal Inquiry
Post by: dadams on February 16, 2011, 02:21:56 AM
I imagine that the DNA database/register will mirror the UK DonorLink one as that is what was referenced and also the only current one being implemented.
But I have serious concerns about using the CODIS markers for this type of matching in a random database. So it will be interesting to see what form it may take.


Title: Re: Federal Inquiry
Post by: bev on March 19, 2011, 02:20:02 AM
the senate inquiry report has made it into Bionews

http://www.bionews.org.uk/page_89749.asp?dinfo=AJw9KQgM4bkFoH5VJjyHSSpz

mentions the reimbursements issue and fwiw I recently heard on the grapevine that Repromed in Adelaide have recently announced ceasing all 'reimbursements' to donors including for travel or parking or time lost from work etc, for both egg and sperm donors, only actual medical costs are covered.

Bev


Title: Re: Federal Inquiry
Post by: dadams on March 19, 2011, 05:16:52 AM
Hi Bev
yes that is the article I wrote.
I might have to get into contact with repromed and see what they say re the reimbursements. That is very interesting.
For sperm donors I can't see that there would be any medical costs. Egg donation would be quite different obviously.


Title: Re: Federal Inquiry
Post by: bev on March 22, 2011, 02:18:45 PM
lol Damian that's actually pretty funny, I didn't even look at the author
Should have known why it was so well written  8)

I think medical costs means stuff like blood tests and sperm testing etc, you're right, must be much less than for egg donors with the whole IVF thing

Cheers, Bev